NOTE: This procedure is consistent with the Tri-Council Policy Statement TCPS2 Chapter 9, Research Involving the First Nations, Inuit and Métis Peoples of Canada.
Research, which involves Aboriginal communities or individuals, will follow the principles, standards and procedures within the Ethics Policy and related procedures. However, in accordance with the Tri Council Policy Statement for Ethical Conduct for Researcher Involving Human Participants (Tri-Policy Council), additional requirements are needed to ensure the rights and interests of the Aboriginal community as a whole are respected, according to four guiding principles:
Researchers and the Research Ethics Board (REB) will consider whether application of the core principles of the Tri Council Policy Statement for Ethical Conduct for Research Involving Human Participants (Tri-Council Policy) and these procedures require interpretation or adaptation in the context of proposed research involving Aboriginal participants, to demonstrate respect for Aboriginal rights and cultural heritage, the integrity of Indigenous knowledge systems, and the diversity among and within Aboriginal communities. The Aboriginal Education Advisory Council may be consulted to assist in this consideration. The requirement for interpretation or adaptation may apply to the following situations:
In research proposals involving one or more Aboriginal communities or a significant number of Aboriginal participants, researchers will inform the REB of how they have engaged or intend to engage the community in approving, advising on or managing the project (See for example Appendix A). The nature and extent of community engagement should be appropriate to the type of community and proportionate to the level of Aboriginal involvement in the research.
Research that is undertaken with Aboriginal communities will:
a. the protection of the Aboriginal community’s cultural estate and other property;
b. the availability of a preliminary report for comment;
c. the potential employment by researchers of members of the community appropriate and without prejudice;
d. the willingness of researchers to cooperate with community institutions; and
e. the willingness of researchers to deposit date, working papers and related materials in an agreed-upon repository;
8. Ensure that financial arrangements are equitable and transparent;
9. Acknowledge in the publication of the research results the various viewpoints of the community on the topics researched;
10. Afford the community the opportunity to reach and respond to the research findings before the completion of the final report, in the final report or even in all relevant publications and to provide, free of charge, copies of the report to the subject community; and
11. Highlight any disagreement between the Aboriginal community and the researcher must be accurately reported within the interpretation of the data in the research reports or publications. If necessary, third-party mediation will be provided.
EXAMPLES OF ABORIGINAL INVOLVEMENT AND ABORIGINAL COMMUNITY ENGAGEMENT
In the following examples, List A illustrates degrees of Aboriginal involvement in a variety of research projects and List B gives examples of community engagement proportionate to the level of Aboriginal involvement in each type of project cited.
List A: Examples of Aboriginal Involvement
List B: Examples of Proportionate Community Engagement
If Aboriginal individuals self-identify during the collection of primary data in the blood pressure study, researchers should inquire whether culturally appropriate assistance is desired to interpret or support compliance with protocols. Since Aboriginal participation is incidental rather than scheduled, informing the REB is not required. However, it should be noted that including markers of Aboriginal identity in data may reveal anomalies that warrant further, more targeted, research.
Last updated June 23, 2015
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